Nada's story

My name is Nada Mohamed. I'm from Egypt, I’m 20 years old and I have cystic fibrosis (CF).

Our family is supposed to consist of six members. My mum, my dad and four children. My oldest brother was born in 1992 with CF, but no one knew what he suffered from and he was not diagnosed, so he passed away when he was 1 year old.

The second child was a girl. Doctors diagnosed her as having CF, but due to the absence of this disease in Egypt at that time and the lack of the necessary preparations and treatments, she lived only 16 years then passed away.

My third sibling was born with CF too. He was fortunate because he started taking a treatment called Creon at the age of 14 in 2010. At this time the disease had become known to some doctors here (though still not really known to the general public). Although he fought a lot, the medical facilities helped him only until he had lived 21 years. He then passed away in 2016.

Finally, we became a family of three members - me and my parents.

My story isn't the only one in Egypt, I know more than 200 family have a similar story to tell.

Please listen to us. We all deserve access to treatment that could save our lives.